About us
WHY WE CREATED VISIBLE DIFFERENCE AOTEAROA
We started Visible Difference because in Aotearoa, individuals living with visible differences often face unique challenges.
These individuals represent a minority group, frequently impacted by rare conditions, with limited access to information or treatment options specific to Aotearoa. The rarity of these conditions, combined with the small population and vast geographical spread, makes it especially difficult for people to connect with others who share similar experiences or challenges.
Essential support services like physiotherapy or psychology are often underfunded or unavailable, leaving many without the help they need. Stigma surrounding visible differences continues to persist in schools and workplaces, further limiting opportunities and impacting wellbeing.
While similar organisations overseas offer vital support, we recognised that Aotearoa would greatly benefit from having its own dedicated services. Visible Difference Aotearoa was founded in 2022 (registered as a New Zealand charity in 2024) to bridge this gap, providing much-needed resources, connection, and support to those living with visible differences.
WHAT IS VISIBLE DIFFERENCE
The term "visible difference" is used to describe a physical characteristic that makes a person look different from what people commonly look like.
Unlike terms such as "disfigurement" or "deformity," which can carry negative connotations, "visible difference" is a more neutral and inclusive way to acknowledge these differences without implying abnormality or defect.
Visible differences may result from congenital conditions such as birthmarks or cleft lips, injuries such as burns or wounds, illnesses, or surgery. Visible differences affect people in different ways but they can have psychological, social, and sometimes physical impacts on those who have them.
Many visible differences do not affect the way a person lives and functions in society, but some people experience unwanted attention or negative interactions.
OUR VISION
To empower Kiwis living with a visible difference in Aotearoa
OUR GOALS
Build community for those with visible differences and their whānau
Provide support, resources, and education for people and their communities navigating life with a visible difference
Advocate for the community through engagement with health professionals, contributing to health policy, and participation in research.
WHO WE WANT TO HELP
New Zealand's health service is limited in addressing the physical aspects of conditions causing visible differences. We want to provide comprehensive support that focuses on psychological, social, spiritual, and family challenges individuals and their loved ones face when living with a visible difference.
This initiative is for:
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New parents meeting their newborn child with a visible difference - unsure of what the future holds
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Individuals and whānau searching for others who share their condition and experiences
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Families helping their school-aged child navigate self-identity and confidence
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Teenagers starting high school, meeting new people who don’t know their story
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Individuals grieving and rediscovering their identity after trauma, surgery or cancer
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Those who had a ‘simple’ facial palsy, but it hasn’t resolved as expected
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Individuals facing a condition that will progressively change their appearance
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Adults or parents deciding whether or not to pursue further surgery
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People preparing for their first job interview or starting a new career
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Teachers looking to support a child in their classroom
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Anyone who just wants to know that it’s okay to have a visible difference
Ki te kotahi te Kākaho, Ka Whati; Ki te Kāpuia, e kore ewhati.
If a reed stands alone, it can be broken; if it is in a group, it cannot.
HOW WE'LL DO IT
Central online hub
The initiative takes shape through a central online hub, designed to be accessible, user-friendly, and culturally relevant. The website offers tailored resources, including practical guides, personal stories, and expert advice, addressing the unique challenges faced by individuals living with visible differences.
Support groups and peer networks
Support groups and peer networks are created both online and in-person, providing a safe space for individuals to connect, share experiences, and offer mutual support. These groups cater to specific needs, such as new parents, individuals adapting to post-surgery changes, or those adjusting to life with prostheses.
Education campaigns
Education campaigns are launched to raise awareness and promote positive representation of individuals with visible differences in schools, workplaces, and broader communities. This helps challenge stigma and encourages inclusivity and understanding.
OUR BRAND
Our brand celebrates the uniqueness and resilience of Kiwis with visible differences, helping to ensure they receive the respect and support they deserve. They are strong, one-of-a-kind, and undeniably resilient.
The stylised heart logo is crafted from two overlapping fingerprints - symbolising individuality, authenticity, and meaningful human connections within the community. The heart represents compassion and strength.
Embrace your unique.
