As you move from the early days of processing the news and finding your footing, a new phase begins: understanding your child’s needs, accessing support, and finding your people. You don’t need to have everything figured out at once. This is still a journey, and every step forward counts. Its ok to take things one day at a time.
ACCESSING CARE AND SUPPORT
Your baby’s visible difference may come with medical, developmental, or emotional needs, and knowing what support is available can help you feel more prepared.
Depending on your child’s situation, you may work with a range of healthcare professionals, including:
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Your GP or family doctor: often your first point of contact for referrals and general care
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A paediatric team: including specialists who can monitor your child’s development and coordinate treatment
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Allied health professionals: such as speech therapists, occupational therapists, physiotherapists, or dietitians
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Mental health support: for both you and your child as they grow, such as counselling
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A hauora provider or Pacific health service: for culturally specific care for your whānau.
Start early, build your pathway
We encourage you to talk with your healthcare team as early as possible about what care might be needed, now and in the future. These conversations help lay down a clear pathway of support, so you have some understanding of what to expect and who to turn to as your child grows.
It’s okay if you don’t know what questions to ask yet, just starting the conversation is a powerful first step.
Support to navigate the system
Some services, like counselling, physiotherapy, or even specialist appointments, can be hard to access, especially in rural areas. You may experience long wait times or feel unsure where to turn.
Visible Difference Aotearoa is here to help. We can support you in understanding the system, exploring options, and applying for funding where available. You don’t have to figure this out alone.
FINDING CONNECTION
Connecting with others who understand your journey can be a powerful source of strength and reassurance. At Visible Difference Aotearoa, we offer a range of support designed to help you feel informed, empowered, and less alone.
Our central online hub is a welcoming space where you can find accessible resources, including practical guides, personal stories, and expert advice tailored to the experiences of those living with visible differences.
We also offer peer networks and support groups, both online and in person. These groups are safe, inclusive spaces where you can share experiences, ask questions, or simply listen. Some groups are created especially for new parents, while others support people adjusting to surgery, prostheses, or changing appearance.
Through our education campaigns, we also work to challenge stigma and promote positive representation in schools, workplaces, and the wider community.
You’re welcome to connect in whatever way feels right for you, now or in the future. We’re here when you need us.
LOOKING AHEAD
Your child is valuable, loved, and full of potential. A visible difference is just one part of who they are, it does not define them or limit what they can achieve.
Life may look different than you expected, and it’s okay to feel unsure about what lies ahead. But difference doesn’t mean less. Your baby’s life can still be filled with joy, learning, connection, and growth.
Celebrate the little moments, first smiles, cuddles, milestones, and all the ways your baby shows who they are. These early months are about building strong bonds and feeling your way forward together, one day at a time.
Getting support early, both practical and emotional – can help you feel more confident and better prepared. Whether it’s guidance from your healthcare team, support from other parents, or simply knowing that someone is there to listen, these small steps can make a big difference.
WHERE TO FIND HELP
You don’t have to navigate this alone. Support is available, for your child, for you, and for your whānau.
Visible Difference Aotearoa
Go to Resources to find:
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Tailored resources and practical guides
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Peer networks and support groups
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Help connecting with other families in similar situations
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Funding information applying for psychological support
If you’re not sure where to start, we’re here to help you take the next step.
Talk to your GP
Your family doctor is often the best starting point for coordinating care. They can provide referrals, monitor your child’s development, and support your own wellbeing too.
If you’re in crisis or need urgent support
You are not alone, and help is available right now.
PlunketLine offers free support 24/7 from registered nurses: 0800 933 922
Learn more about postnatal mental health support on the Plunket website at plunket.org.nz
In an emergency, always call 111
Your wellbeing matters – please don’t hesitate to reach out.
